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    Last Updated: 01/09/2026

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    MediFind found 9 doctor with experience in Paramyotonia Congenita near Grand Rapids, MI. Of these, 6 are Experienced and 3 are Advanced.

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    9 providers found
      Aiesha Ahmed
      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      Corewell Health Grand Rapids Hospitals Epilepsy - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      26+ years
      Languages Spoken:
      English

      Aiesha Ahmed is a Neurologist in Grand Rapids, Michigan. Dr. Ahmed has been practicing medicine for over 26 years and is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Myasthenia Gravis, Neurosyphilis, Continuous Muscle Fiber Activity Hereditary, and Isaacs' Syndrome.

      Paul T. Twydell
      Advanced in Paramyotonia Congenita
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology
      Advanced in Paramyotonia Congenita
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      26+ years
      Languages Spoken:
      English
      Accepting New Patients

      Paul Twydell is a Neuromusculoskeletal Medicine specialist and a Neurologist in Grand Rapids, Michigan. Dr. Twydell has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Myasthenia Gravis, Monomelic Amyotrophy, Chronic Inflammatory Demyelinating Polyneuropathy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Twydell is currently accepting new patients.

      Advanced in Paramyotonia Congenita
      Advanced in Paramyotonia Congenita

      Advantage Health/saint Mary's Medical Group

      220 Cherry St Se, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Melanie Taylor is a Neurologist in Grand Rapids, Michigan. Dr. Taylor has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Lambert-Eaton Syndrome, Spinal Muscular Atrophy (SMA), Peripheral Neuropathy, and Myasthenia Gravis. Dr. Taylor is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Paramyotonia Congenita
      Neurology
      Advanced in Paramyotonia Congenita
      Neurology

      Advantage Health/saint Mary's Medical Group

      250 Cherry St Se, 
      Grand Rapids, MI 
       (0.9 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients

      Min Zhu is a Neurologist in Grand Rapids, Michigan. Dr. Zhu is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2B, Limb-Girdle Muscular Dystrophy Type 1A, Limb-Girdle Muscular Dystrophy Type 1B, and Limb-Girdle Muscular Dystrophy Type 2C. Dr. Zhu is currently accepting new patients.

      Kelsey Satkowiak
      Experienced in Paramyotonia Congenita
      Neuroradiology | Neurology | Neuromusculoskeletal Medicine
      Experienced in Paramyotonia Congenita
      Neuroradiology | Neurology | Neuromusculoskeletal Medicine

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kelsey Satkowiak is a Neurologist and a Neuromusculoskeletal Medicine provider in Grand Rapids, Michigan. Dr. Satkowiak has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Foot Drop, Cramp-Fasciculation Syndrome, Myotonia Congenita, and Distal Median Nerve Dysfunction. Dr. Satkowiak is currently accepting new patients.

      Andrew W. Mundwiler
      Experienced in Paramyotonia Congenita
      Neuromusculoskeletal Medicine | Neurology | Neuroradiology
      Experienced in Paramyotonia Congenita
      Neuromusculoskeletal Medicine | Neurology | Neuroradiology

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      15+ years
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Mundwiler is a Neuromusculoskeletal Medicine specialist and a Neurologist in Grand Rapids, Michigan. Dr. Mundwiler has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy (SMA). Dr. Mundwiler is currently accepting new patients.

      Matthew J. Ebright
      Experienced in Paramyotonia Congenita
      Neuroradiology | Neurology | Neuromusculoskeletal Medicine
      Experienced in Paramyotonia Congenita
      Neuroradiology | Neurology | Neuromusculoskeletal Medicine

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English
      Accepting New Patients

      Matthew Ebright is a Neurologist and a Neuromusculoskeletal Medicine provider in Grand Rapids, Michigan. Dr. Ebright has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Relapsing Multiple Sclerosis (RMS), and Multiple Sclerosis (MS). Dr. Ebright is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Neurology | Palliative Medicine
      Experienced in Paramyotonia Congenita
      Neurology | Palliative Medicine

      Advantage Health/saint Mary's Medical Group

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Joel Phillips is a Neurologist and a Palliative Medicine provider in Grand Rapids, Michigan. Dr. Phillips is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Parkinson's Disease, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy (SMA). Dr. Phillips is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Family Medicine
      Experienced in Paramyotonia Congenita
      Family Medicine

      Advantage Health/saint Mary's Medical Group

      7782 20th Ave, 
      Jenison, MI 
       (9.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Amy Henne is a primary care provider, practicing in Family Medicine in Jenison, Michigan. Dr. Henne is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Myotonic Dystrophy, Myotonic Dystrophy Type 2, Teratoma of the Mediastinum, and Testicular Cancer. Dr. Henne is currently accepting new patients.

      Showing 1-9 of 9

      Last Updated: 01/09/2026

      What is the definition of Paramyotonia Congenita?

      Paramyotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in infancy or early childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally. Myotonia causes muscle stiffness that typically appears after exercise and can be induced by muscle cooling. This stiffness chiefly affects muscles in the face, neck, arms, and hands, although it can also affect muscles used for breathing and muscles in the lower body. Unlike many other forms of myotonia, the muscle stiffness associated with paramyotonia congenita tends to worsen with repeated movements.

      When should I see a Paramyotonia Congenita doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Paramyotonia Congenita doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Paramyotonia Congenita doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Paramyotonia Congenita doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Paramyotonia Congenita doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Paramyotonia Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Paramyotonia Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Paramyotonia Congenita doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Paramyotonia Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Paramyotonia Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Paramyotonia Congenita doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Paramyotonia Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Paramyotonia Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Paramyotonia Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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